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[11 Jul 2009|08:01pm] |
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How common is it to have extreme muscle weakness in the morning? When this all started I went through an acute phase where I couldn't get up or even open my eyes for about 10 minutes in the morning and then it was a gradual thing to actually move. These days it's not as bad, but I wake up with double vision every morning and my hands are all balled up for about 20 minutes or so. I have found that opening and shutting my hands later in the day helps reduce and sometimes even prevent this the next morning and I'm even trying "eye pushups" for the double vision. I still have a hard time with this diagnosis. I'm only 27 and not being able to open my hands in the morning seems ridiculus. I think I maybe need some reassurance that this is the right diagnosis and there's not some other horrible thing going on that needs different treatment. I see the doctor next week so I'll ask him too, but how many of you guys have this issue? I'm much better after I'm fully awake but the first hour maybe is very hard.
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| Ugh |
[11 Jul 2009|03:16pm] |
Anyone have any experience with spinal fractures and fibro?
I was just diagnosed with a fracture of L1, 3 weeks AFTER the incident occured.
I already have a call in to the orthopedist, but they will certainly not give me info before monday.
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| Fibro, Allergies, or Virus? |
[11 Jul 2009|02:35pm] |
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mood |
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 drained |
] |
Does anyone here have her (or his) own way of determining when malaise is a flare or something else?
I woke up feeling rather awful, but I don't actually know if it's just a flare or allergies, or if I am actually getting sick. There's the standard fatigue, achiness, headache, general weakness; and then there is a slightly sore throat, watery eyes, mild congestion, swollen nasal passages.
Tonight, I will be going with my husband to a party in the same town, seeing many friends who live too far away for me to see on a regular basis. I want to have fun, feel happy, that sort of thing. I feel none of those things. Hell, for all I know, this could be very mild depression.
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| ca285 - Lezet - Meld4 |
[11 Jul 2009|02:24pm] |
Artist: Lezet
(feat: Frederique Bruyas, Xabier Iriondo, Georges Aperghis, [-hyph-], Total Oral Maniac, Bryan Lewis Saunders, Archilochus, Damman-Cosgrove Duo, Matthias Boss)
Title: Meld4
#ca285
Date: 2009-07-11
Keywords: free improvisation, spoken word, experimental; avant-garde; jazz-electro; guided improvisation; free jazz; eclectic; other
Tracklist:
01 - Conversation 1 & 2 - 2:09 (320 kbps)
feat: Frederique Bruyas, Xabier Iriondo & Lezet
words: Georges Aperghis
02 - Tropic 2 (Movements 1 & 2) - 9:40 (320 kbps)
feat: [-hyph-] & Lezet
03 - Archilochus - 7:26 (320 kbps)
feat: Total Oral Maniac, Bryan Lewis Saunders & Lezet
words: Archilochus, Bryan Lewis Saunders
04 - Lunar Synthesis - 14:10 (320 kbps)
feat: Damman-Cosgrove Duo, Matthias Boss & Lezet
MELD4 is the fourth in the series of albums of remixes and collaborations with remarkable artists from around the world. This time some of the most brilliant contemporary/avant-garde/jazz musicians have helped Lezet and made this album available.
Contacts:
http://www.myspace.com/lezet1
DL:
http://www.archive.org/details/ca285_l
http://www.clinicalarchives.spyw.com
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| Ferritin (the blood test, not the annoying furry pets) |
[10 Jul 2009|01:31pm] |
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mood |
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tired |
] |
Has anyone else here had ridiculously low ferritin levels? Mine are off-the-charts low (1 on a reference range of 20+; I was at a healthy 70 just a year ago), and I'm exhausted all the time. We've already ruled out the usual causes, like generalized malabsorption, poor diet, internal bleeding, menstrual problems, etc. I'm seeing a gastroenterologist later this month to determine if maybe I have selective malabsorption. I got my first IV iron a couple days ago; but so far, it has not helped my energy levels as much as we'd hoped. Has anyine else had this? All my other bloodwork is coming back perfect, except my iron binding capacity is high, as one would expect in this situation. We even caught it early enough that I'm not anemic yet. The best guess anyone has so far is a depressingly pathetic one: marathon runners and olympic strength trainers often have low ferritin like this, right? So we're thinking maybe I just suck at life so much that trying to work part-time, even at a sedintary job from home, affects my body the way marathon training would affect a "normal" individual. I'm open to other suggestions. What do you all think?
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| anesthesia |
[10 Jul 2009|11:38am] |
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mood |
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 frustrated |
] |
i just had minor outpatient surgery on a subcutaneous cyst and was told the anethsia was supposed to last an hour. It faded after 30 minutes. So not only do i have this pain but my back and my chest decided to flare up. ><
Anyone else have anesthesia not last as long as was told? is this something that FMS can affect?
i'm just completely out of spoons today and I had so much I needed to do D:
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| Antichrist |
[10 Jul 2009|01:01pm] |
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Has anyone found a torrent yet? I really want to watch it.
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| Should I Stay or Should I Go Now?! |
[10 Jul 2009|04:15am] |
I'm sure some of you know I've been going through a weird flare...I am still having mucho neck and shoulder stiffness, knots and pain...and my head still isn't the fibro version of 100%. However, this weekend, there are bands playing Friday and Saturday that I want to see and that my hubby may or may not have already bought tickets to see. I would rather just go on Friday, but there's no way hubby is going to sit out the Saturday show. So, I'm very torn. My heart says, 'Go to both, you idiot!" My body says, "Forget them both." My will/mind says, "You might can get away with one, but two is pushing it. " I need to decide whether to stay at home for both, and convince hubby to stay with me on Friday, and let him go by himself (which I usually have no problem with, but he's already gone out without me once this week and I want some hubby/wifey time, plus this band is legendary and I really don't want to miss them). Stay at home for both and let him go to both...or go ahead and go to both.
More factors:
-I will have to be in my wheelchair, outside with a crowd of drunk, smoking punks.
-The last time I went to a show at this venue I got terrible bronchitis because of the cigarette smoke. I was sick for a month, but this could've been a flu.
Anyhow, if you were in my situation, what would you do?
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| Men Behind the Sun (1988) |
[09 Jul 2009|09:07pm] |
Although there have been a few sequels and remakes, the original Men Behind The Sun is still pretty memorable. The copy I watched was on an old VHS tape, and the transfer from the original film was pretty grainy - all of which combined to give this depressing film about Japanese war atrocities the look of a documentary. There isn't much of a plot to Men Behind The Sun - it largely concerns itself with the inhumane experiments conducted in Japanese prison camps during world war two. The film could easily have been just another forgettable piece of so-called shock cinema, but instead it goes over the edge into the realm of the truly screwed up.
( Read more... )
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| ca284 - Impulsantwort + Pharmakustik - Antinomie |
[10 Jul 2009|08:15am] |
Artist: Impulsantwort + Pharmakustik
Title: Antinomie
#ca284
Date: 2009-07-09
Keywords: electronic; experimental; dark ambient; drone; sound manipulations; other
Tracklist:
01 - gra_n2 - 5:53 (320 kbps)
02 - gra_n3 - 8:24 (320 kbps)
03 - gra_n4 - 5:52 (320 kbps)
04 - gra_n5 - 5:50 (320 kbps)
05 - gra_n6 - 7:13 (320 kbps)
06 - gra_n7 - 7:49 (320 kbps)
07 - gra_n8 - 7:08 (320 kbps)
ANTINOMIE, the newest aural investigation by IMPULSANTWORT + PHARMAKUSTIK from Germany contains seven powerful circles of abandoned ambiences full of contradictory particles within the microorganic complexity. The involvement of granularly shredded machine-propulsions combined with thermonuclear freezing and the final analogue screams from the subterranean draught makes ANTINOMIE an outstanding result of thesis and antithesis. Plasmatic ambiences created from the pool of infinite randomness. "The source of the new is the random" (Gregory Bateson).
Contact:
IMPULSANTWORT (Sandro Kaiser + Alec Threshold)
http://www.theesonicabyss.com/impulsantwort.com
http://www.myspace.com/1mpulsantwort
PHARMAKUSTIK (Siegmar Fricke)
http://www.myspace.com/siegmarfricke
DL:
http://www.archive.org/details/ca284_ip
http://www.clinicalarchives.spyw.com
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| Fibro and the VA |
[09 Jul 2009|09:36pm] |
Does anyone have any insight into the VA and how they view Fibro? Odds are good that I will become an ARMY wife in the next few years and need to know any information anyone may have on their view of it. I was diagnosed by a private doctor in August of 2008 and am just starting to get a general level of control over it. Basically, I can usually sleep through the night (6 hours) and tolerate the pain enough to work. I just need to plan for the possibility of needing private insurance to keep being treated once I marry.
Any experiences with Fibro and the VA would be appreciated.
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| One of my favourite quotes: |
[10 Jul 2009|11:00am] |
Or, if there were a sympathy in choice,
War, death, or sickness did lay siege to it,
Making it momentany as a sound,
Swift as a shadow, short as any dream,
Brief as the lightning in the collied night,
That, in a spleen, unfolds both heaven and earth;
And ere a man hath power to say "Behold!"
The jaws of darkness do devour it up:
So quick bright things come to confusion.
- A Midsummer Night's Dream Act 1, scene 1, 141–149
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| Second "I love you" anniversary. |
[09 Jul 2009|11:34am] |
07 / 07 / 07
We were together months prior to that date but it's the day we acknowledge as our Anniversary. It's the day swapped the words "I love you" with conviction, even though our hearts said it long before that. It's pure coincidence that the numbers match up so perfectly but I have always been one for triple numbers. Both of us believe in showing affection, doing kind things for each other and lavishing ourselves in in so called special things every day of the year, so anniversaries are just an acknowledgement of the time we have spent by each other's side. The Japan trip an early [amazing] gift and on Saturday we went out for dinner like we usually do because the Tuesday would be too rushed. An enormous seafood and fruit platter and then we went home because the winds were freezing plus the best thing for us to do together is just lay in bed [head on his chest] and watch movies.
( + )
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| Powerpop FTW! |
[08 Jul 2009|07:54pm] |
Hey everyone! I'm trying to find new unsigned powerpop/emo bands to get into. If anybody could suggest some, it'd be quite boss! lol. I just watched the vid to a catchy song on youtube called Hey Morgan. It's stuck in my head and im still laughing. lol. But stuff like that's what I'm into.
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| Mattress recs? |
[07 Jul 2009|11:58pm] |
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Anyone have a mattress brand/style/configuration that they're really happy with? My mattress on the floor is starting to get old, and I'd love to be able to actually sleep in a bed again.
My biggest problem at night is leg and neck pain, so whatever is good for that would be great. I like firm mattresses in general..but I just want a helpful mattress at this point. Couch sleeping is surprisingly good for my pain, but I need something with a bit more..eh..class. Price is a consideration...I'd prefer not to go even close to $1000 (more the $500 mark), but obviously I'm open to suggestions.
Thanks in advance guys!
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