| Vacation Time? |
[08 Jan 2010|11:50am] |
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I was talking to someone in mid-December and she was surprised that I wouldn't have the holidays free. Y'know, from being chronically ill. Since everyone else had time off why wouldn't I? (This is not a commentary on the person, btw. I look healthy and people forget.)
Being sick on holidays is one of the worst parts of this. Yeah, it sucks to be in serious pain and stuck at home. It really sucks to not be able to work or anything. But missing out on fun times, or feeling crappy during them, is just not fair. Plus everything I read about myofascial pain says it's treatable but mine is chronic and my fascia is f*cked so not applicable. Why can't I have something medical science knows and cares about and can treat?!?
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[07 Jan 2010|10:02pm] |
why can't we sleep forever, i just want to start this over.
yeah, i just quoted tool on livejournal.
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| New Comm... |
[07 Jan 2010|01:55pm] |
Sorry if this is out of place for the mods, if it's against terms, feel free to delete...
I have created a new community for those of us with Osteoarthritis, called ![[info]](http://l-stat.livejournal.com/img/community.gif) osteoarthritis, if you have it, or think you may have it, please join to relate with others, share stories, tretments, experiences, and to learn more about the condition.
Again, thanks!
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| Mi2N Opens 2010 With Revamped Music Newswire Website |
[07 Jan 2010|11:12am] |
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Website: http://www.mi2n.com/
Music Industry News Network (Mi2N), the largest online music industry newswire, opened the new decade with a new site design delivering more news, easier navigation and new categories. Launched in 1998, Mi2N is the most comprehensive online music industry newswire, having kept professionals worldwide informed on the latest developments shaping nearly every facet of the industry.
Music Genre-Based Categories
Global Reach
More RSS Feeds
Full-Service PR
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[06 Jan 2010|09:06am] |
THE FAM
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| my update bc its been awhile and things have changed.. |
[05 Jan 2010|06:58pm] |
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mood |
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music |
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colbie caillat |
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So the lexapro im not anymore.. the side effect it gave me was extreme fatigue, not being able to pee correctly (ha), and my pupils were massive and i do not why. So i had to stay home for a week and be off of lexapro and i stayed off of xanex for a week. My family dr put me on cymbicort. I didn't really think i was depressed but I guess I am a little.. probably bc everything bad keeps happening to me & I never go out & i'm always home sick. It makes me crazy. but my anxiety has me going crazy.. like im always anxious. i feel like i cannot calm down.. *sigh*
Unfort my stress still made me stutter & my eyes blink like crazy when i get those weird headaches. Sometimes I don't even know if its related to stress or if its weird migraines. But i keep stating my migraines are bad... but no one is listening. I swear it feels like i talk to a wall with drs!
I'm still on Lyrica. They started me on 150 mg, 1 at night for a wk and then 1 in morning & 1 at night.. Now i'm at 1 in morning & 2 at night for a wk and then 2 in morning & 2 at night. I hope it helps bc it wasn't working - and I've been up nights bc of too much pain.
The cold weather isnt helping at all.. ive been walking more w/my cane.. even just around the home. And my body feels like a big FAIL.
I have to see a psychiatrist now (instead of a psychologist).. and around here its really hard to find a good one i think.. i don't want a nut- nut dr haha.
I started PT today.. my legs aren't as weak as i thought. but my balance is bad & my upper body is weak. So I go 3x a wk.. and they even have a hot tub.. im afraid of it.. bc i know it will help my back & neck BUT heat on my feet can get CRAZY HOT! so .. we shall see.
*hugs* to everyone.
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| disability ducks |
[04 Jan 2010|05:36pm] |
I have resolved to get my ducks in a row to start filing for disability so maybe I can go back to school.
Can people fill me in on what ducks I do need to get in a row?
What things should I have in order and prepare before I start filing?
Does anyone know what you need for VESID to qualify for "retraining"?
Thanks!
MaRissa
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| fatigue |
[04 Jan 2010|01:36pm] |
What have you done to deal with/treat the fatigue?
How severe is your fatigue?
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| Sleep or the lack of it |
[03 Jan 2010|03:03am] |
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I have NOT been sleeping well for months. I have gotten all mixed up with a non routine.
Lost my job end of March so i can sleep in, and stay up late. My GF is in another time zone, a five hour differance, so sometimes I am up too late or up way too early.
Anyway I have been taking Klonipin 2 mg, Melatonin 6 mg, and 4 benadryl to sleep each night. Which does work, most of the time usually takes 30 minutes to a couple of hours to kick in.
I really don't like mixing meds, but without insurance I am limited to what I can afford. Ambien is 56 dollars for 6 pills. So it is not an option.
I have tried eliminating part of my sleep cocktail but then I just lay in bed not sleeping. So I continue taking lots of pills, this has been my method for over 6 months now.
I am open to any ideas, I take 90 mg of cymbalta a day for depression and some natural supplements. No chocolate, soft drinks, and my tea is decaf, usually I drink water with one sweet tea a day. Processed sugars are not really my thing, and I do not eat chips, popcorn candy or other junk foods.
can anyone help? Thanks for any help you can give
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[02 Jan 2010|11:56pm] |
So, I had convinced myself I did not have FM and was about to leave the community, but the new Rheumatologist wants to treat me for it anyway. I apparently have almost ll of the pressure point signs, but I was under the impression that since the medrol made me feel so much better that it wasn't FM. I also have joint pain and I thought FM was more muscles and over all pain. Mine is limited to my joints.
Do any of you have joint pain? Have you ever felt better from steroids? The Dr said steroids can make ANYONE feel better so th ats why it worked.
How many of you lead normal lives while medicated? I'm taking Cymbalta and flexerall now, and Monday I start Celebrex.
Thanks in advance.
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| BRB sweating |
[01 Jan 2010|11:43pm] |
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I've always been what my mom called "cold natured", we both were. Everyone else in a room would be too warm but we'd be in sweaters because we were cold. I'm sure y'all see where this is going. For a little while now I've been noticing that I'm warm when no one else is. I actually had to wait outside while my husband ordered take out not too long ago because I was burning up inside. And at night (I hope this isn't too gross for anyone, if it is let me know and I'll add a cut tag) I sometimes wake up and have been sweating so badly that my sheets are damp. The first time I was worried I'd wet the bed or something! And I have noticed that it's especially bad at night, though it's not just at night.
So have others here dealt with this problem? If so, can you offer any suggestions on dealing with it? I'm on Cymbalta but I'm guessing that it's more of a fibro thing than a Cymbalta thing.
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[01 Jan 2010|11:18am] |
GOD IS INVINCIBLE
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[01 Jan 2010|07:28am] |
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this past year sucked my hairy nutsack, but i feel like this year might actually be kinda tight.
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| ca346 - Clutter - Four O*Clock Chimes |
[01 Jan 2010|03:03pm] |
Artist: Clutter
Title: Four O*Clock Chimes
#ca346
Date: 2009-12-31
Keywords: electroacoustic improvisation; ambient; experimental; electronic; sound art; sonic art; generative; contemporary; acousmatic
(320 kbps)
Four O*Clock Chimes is an album of pure electroacoustic improvisation by Clutter using field recordings from around the UK. Tracks 2-4 were originally recorded for a session on the Jeff Grainger Show on Dandelion Radio in October 2009. All tracks were recorded with a combination of software and hardware and have only been topped and tailed for release no other editing has taken place.
Clutter is Shaun Blezard, an improvising sound artist and musician from Cumbria, UK. He has released a number of albums since 2001 and has supplied music for films, theatre, dance and installations. He has also toured around the globe as Clutter and with Id of Mobius, orfeo 5, Good Noise Bad Noise, Dreamdroning and collaborated with the likes of Susan Matthews and Chris Lynn. Clutter also runs the net label and not for profit arts organisation Earth Monkey Productions
Contact:
http://www.cluttermusic.com
DL:
http://www.archive.org/details/ca346_c
http://www.clinicalarchives.spyw.com
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[01 Jan 2010|04:03am] |
What are your experiences with Cymbalta? My Rheumatologist told me I might vomit violently for 3-5 days but to stick with it and it would subside.
I was wondering if that was anyone elses exp. I'm taking 30 mg for one week then 60.
My 3 year old has some Zofram and I'm not afraid to take it if I get sick, haha.
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| Dear everybody on LiveJournal |
[31 Dec 2009|11:21pm] |
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Please, if you are posting about killing yourself - don't do it.
I know you're sad, and frustrated, and lonely and in pain. I really do.
What sucks is that I don't have the wise words, or even the energy to talk y'all down from the ledge, so that just means that I go to bed tonight and wonder which of my friends will be dead in the morning.
I don't want to have to do a roll call and a head count, holding my breath until I'm sure that all of you are safe and sound. Could you, just for me, hold on for one more day? And maybe one more day after that? I promise I'll be here for you, if you can be here for yourself.
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| job fair |
[30 Dec 2009|10:56am] |
I am nervous and excited to head to a job fair today. I sit here thinking about what kind of job can I really get. I am in a flare right now (which for me means super sore and super tired) so on any other trip to the mall I would be using my cane. I can't really use my cane while job hunting, they will take one look at me and throw away my application. How much should I really expose about my fibro? What jobs are even out there locally? I cant go back to where I worked before, one assault from a resident will put me back in bed for weeks. I cant go back to being a cashier standing on my feet for long hours. I have little to no secretarial experience.
Plus there is the added fun that people from my old job might be there recruiting.
I would avoid the whole thing altogether if I could. Being on unemployment I have to work hard to prove that I am at least looking for a job.
I am anxious and frustrated and really thinking I might say "fuck it!" and use my cane anyway!
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